It came. Yesterday. Finally.
The phone call with the news that we'd been waiting to hear for months. 15 weeks and 5 days to be exact. Since she was less than a week old. The news that dictates Elizabeth's dietary needs and feeding habits for the rest of her life. The news that decides how long she can sleep at one stretch. The news that determines how long we can sleep, too. And how we care for her when she's ill. And the heightened anxiety for us as her parents of the potential health crises looming just above our heads if she eats just a few seconds too late.
The wait is over. Finally.
One abnormal newborn screen result and three rounds of tests later, and we finally have a definitive answer: she's a carrier. Just a carrier. She has the VLCAD gene, but she doesn't have the actual disorder. Her skin biopsy test results came back normal. We can breathe easy. And sleep; we can all three sleep. Finally. Amen with joy! Praise God. At this point any news - whether affirmative or not - is praiseworthy. Thank you God for resting our anxieties and answering our prayers. Elizabeth is just a VLCAD carrier and nothing more ... except that she's everything to us.
No comments:
Post a Comment